Covenant News at www.covchurch.org
CHICAGO, IL (December 25, 2002) - (Editor's note: the following is based on last year's real life
experience of Michele Stanley and her daughter, Georgiana. It is an
inspiring story of hope in the midst of difficult circumstances that is
appropriate during this special season of the year.)
It wasn't the kind of Christmas that Michele
Stanley had anticipated.
An employee of North Park Theological Seminary in Chicago, Stanley hoped to
enjoy a quiet holiday season with family and friends. Instead, she faced
the prospect of her daughter undergoing reconstructive skull surgery.
Three years earlier, four-year-old Georgiana was diagnosed with sagittal
craniosynostosis or closure of fibrous material (known as sutures) in the
skullcap. Normally, fibrous skull material will remain open while the
baby's brain continues to grow. In Georgiana's case, the fibrous material
or sutures were fusing together before the brain had finished growing,
causing the brain to grow unnaturally in her face and causing her skull to
be misshapen.
"I was very uncomfortable with the doctor's suggestion because when
Georgiana was diagnosed I had been adamant that I would not put her through
major reconstructive surgery of her skull strictly for cosmetic purposes,"
Michele said. "I didn't want to be pressured again by doctors who, not
knowing my daughter, were certain they knew what was best for her."
The neurosurgeon stated his concern about the shape of Georgiana's skull -
it was more narrow and long than normal, although it was difficult to
detect because Georgiana's
long hair covered much of the area. The doctor expressed concern that
Georgiana's brain could be pulsing against her skull, which would build
pressure and possibly cause brain damage.
Georgiana was given a CT scan to assess the damage, a test that Michele
said was one of the most difficult things she's ever seen. "Because
Georgiana is active even in her sleep it was very disturbing to see her
lying so very still and silent," Michele said. "This is when my struggle
became real. I realized I was so very scared of losing my daughter that I
had allowed that fear to drive my decisions concerning her health over the
previous three years."
Although the tests were not totally conclusive, Michele took the advice of
the surgeons and scheduled surgery for Georgiana on December 13, 2001, at
Chicago's Children's Memorial Hospital.
The morning of the surgery was difficult and Michele felt anguished about
putting her daughter through such a traumatic, albeit necessary surgery.
"The one thing I vividly remember was very intentionally resisting the urge
to pick Georgie up and run away with
her," Michele recalled. "Every motion was surreal and the burden of guilt
was overwhelming."
Michele and Georgiana had arrived late that morning only to find that they
needed to get blood work completed before the scheduled 1 p.m. surgery. It
didn't help that the initial blood tests at the hospital included a few
panic-stricken moments of screaming by the patient. "It was a struggle to
get the blood draw done and took three tries," Michele said. "I don't think
that I have ever seen so many eyes open so very wide then when we walked
back out to that waiting room."
Michele and Georgiana were comforted by the presence of Michele's mother
and three friends during the period before surgery, but waiting still was
difficult. "I wanted so badly to be calm for Georgie, but I couldn't stop
shaking," Michele said. "I remember repeating, "Oh God, please," over and
over again in my head. I had so much I wanted to ask God for in those
moments that I was not able to say anything beyond those three words.
"When she got to her bed (before surgery), almost immediately we had a
doctor, a nurse and the nurse anesthetist ready to work on her," Michele
continued. "The doctor in particular was very patient and observant. My
mother later told me that he had been watching me for readiness. They
took her history and checked her out, all the usual prep stuff. They
informed me that they would give her a liquid sedative (that would cause
her to not remember anything after taking it) before moving her to the
operating room."
The doctor handed Michele release of liability forms and she cried, shaking
so much that she could hardly sign her name. "I was consumed with the
thought that I was literally signing her life away," she said. "I thought I
might never see her alive again and it would be my fault for giving the
okay (to order surgery)."
Even in the awkward moments, however, there was something to laugh about -
Georgiana's groggy responses after taking a sedative. "Georgie asked me to
hold her hand as we made our way and I never let go but she looked away,"
Michele said. "When she looked back she was so out of it that she asked me,
'Are you the doctor?' I replied no, I'm your mother, to which I got a very
confused look."
At around 1 p.m., Michele left the operating room for the waiting room,
telling God, "She's in your hands, please don't take her." Michele returned
to her mother and friends and "sat down, found a place in God's lap and
just cried."
Michele and company ate lunch and waited until 3 p.m. before getting news
that Georgiana's skull had been opened to check for damage. The next few
hours of surgery, while Georgiana's brain was exposed to all kinds of
possible infections, was the most crucial as the little girl's skull was
reconstructed.
About 5 p.m. Michele's son, Jacob, arrived at the waiting room with another
friend of Michele's. She worried about her son and worried about how they
would respond to seeing a disfigured Georgiana after surgery. But Michele's
worries lessened when the surgeon appeared and said Georgiana's surgery had
been successful and that the girl had needed a minimal amount of blood.
Michele said she was encouraged by the visit of a hospital chaplain she
recognized from school. "I had no idea that my friend who graduated from
North Park Theological Seminary just last May was working as a chaplain at
Children's Memorial Hospital."
Minutes later, however, Michele had her best surprise of the day. She was
allowed to visit her daughter in a recovery room and the girl looked like
the same tyke she walked in with before surgery. Both mother and daughter
cried tears of relief.
"Jacob wanted to see his sister and know how she was doing, but when he had
the opportunity he got scared and wouldn't look at first," Michele
continued. "When we got her settled in her room they finally had an
opportunity to look at each other. Upon seeing her big brother, Georgie
needed only to utter Jacob's name with all of the enthusiasm she could
muster to remove his fear. Jacob looked at me and said, 'she can see me!'
He then turned back to look at his sister and hold her hand."
Georgiana and Michele had their share of harrowing moments during the days
and weeks after surgery. Georgiana was moved to the constant care unit from
recovery shortly after her surgery and during the weekend she was in pain
from the constant intrusive medical tests. Michele she said she was more
exhausted than she had ever been.
But the family found some solace in each other - they celebrated Michele's
mother's birthday and were privy to an in-hospital Christmas concert by
renowned musicians Amy Grant and Vince Gill - and solace in the rapid
progress of Georgiana following surgery. Michele is still amazed by that
miracle-filled period in her daughter's life. And every
look at her daughter's expressive brown eyes and every touch of her
daughter's long brown hair are reminders that God was evident in each
detail during that traumatic period. Christmas 2002 couldn't be happier.
"Georgiana could not be happier, healthier or nuttier than she is now,"
says Michele as she reflects on her daughter's progress a year later. "All
of the plates and screws they used to put her skull back together are
completely dissolved as if nothing ever happened. The neurosurgeon and
plastic surgeon are pleased with the results and other than some
residual emotional processing of the events, it is all finally behind us.
As I recount the experience it seems like a lifetime ago and it amazes me
how every need was met, every fear consoled, every joy affirmed, every
moment and detail sealed with such perfection that despite all of the
turmoil and trauma, the one thing we carry away is the tangible evidence of
God's love through the support and prayers of his people."
A Christmas Miracle to Remember
By Craig Pinley
Despite having craniosynostosis, Georgiana's facial features seemed to be
naturally taking shape and her mother said that her vibrant personality was
intact as well. "Georgiana is beautiful in so many ways," Michele said.
"Her personality more than makes up for her small size. Her perpetual
smile and enormous brown eyes could light a city and her constant laughter,
joy and love ease the deepest pain. She is often very proud to wear her
long brown hair 'just like mommy's and Auntie Robin's.' " As good as things
seemed, however, doctors were cautious. In June 2001, Georgiana's
pediatrician suggested that she be checked by a pediatric neurosurgeon, a
suggestion that was
difficult to accept at first.
"She was perfect! She was not swollen or bruised at all," Michele said.
"Her head was all wrapped up in gauze, but she looked amazingly well for
what she had just endured. I'm sure that she was in pain . . . and it was
evident that she was still bleeding pretty heavily. This made me nervous,
but the recovery nurses had a good watch over her and were very pleased
with her condition.
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